Asking for SoWaller's Prayers

Beach Fanatic

Jul 31, '07 · 11:08 PM33,495

Hi Everyone!

I usually keep all this to myself, but I'm overwhelmed and need your prayers and thoughts. :blush:

Over the past 15 years I've battled with Fibromyalgia and Chronic fatigue syndrome. I have tried many things....some worked and some were a waste of time and money. It's hard for people around you to understand, as one day you may be on top of the world and the next three days or more you can't move from the bed to the bathroom. :idontno:

It is sometimes even harder to get a physician to believe you. :confused:

Fortunately I have had some good Doctors.

Fibromyalgia is a burning painful feeling in your muscles. This makes it hard to pickup things and to move your limbs without a lot of pain. CFS is debillitating and the most frustrating! Usually comes with a cough you can't seem to get rid of, intense fatigue, low grade fever, need for sleep, sleep, sleep. BUT also includes insomnia....that's the double edge sword about CFS.

So it you don't see me very much at the Cafe you'll know I'm at home wishing I could greet you. I hate this because I love working at night ans seeing all my :wave:

SoWal friends. I don't really want to change to lunch, but we'll see. My Doctor says I need to stop at 5:00 p.m. and start my evening of rest. :yikes:

Okay everyone who knows how hard it is to stop at 5:00 in the afternoon raise your hand. :lolabove:

I thought so!!!!

I :wub:

you all!
ItzKatzTime
:wave:

Kat:roll:

Replies

269

Skunky

Sep 24, '07 · 9:26 AM#227

WHOO-HOO!!!

Can I get a prescription?

:nono1: :nono1: :nono1: :banned:

SoWal Insider

Sep 24, '07 · 9:28 AM#228

A word to the wise-flexaril (cyclobenzaprine) is a muscle relaxer that is a potent hypnotic. It is not intended to be used as a sleep aid, nor do I think it is a good idea to use it for anything other than very short term select situations, ie, acute muscle strain or spasm. If one truly needs a pharmacological sleep aid, there are several superior options and those should be used only after non-pharmacological options have been exhausted.

Thanks Dr. Skunky for responding re: this particular post. I was curious myself. I'm always interested in hearing about others' pain management.

My rheumatologist has prescribed for me methotrexate. Not quite sure that it's doing much but she said it would take approx. 6 weeks. These chunks of 6-8 weeks of trying different prescriptions is driving me crazy.

Oh well, moving on...

hmmmm......can't remember

Sep 24, '07 · 9:31 AM#229

:nono1: :nono1: :nono1:

Actually, a few years ago I took something that my Dad had because I had a shoulder out of whack and couldn't sleep. He said that it didn't really do anything to him at all, but I still just took one before bed.

I called my mom at midnight because I was having hallucinations. I slept for the next 36 hours--I would try to get up and just conk out again.

Not funn. I don't recommend it.

Beach FanaticAuthor

Sep 25, '07 · 11:31 PM#230

A word to the wise-flexaril (cyclobenzaprine) is a muscle relaxer that is a potent hypnotic. It is not intended to be used as a sleep aid, nor do I think it is a good idea to use it for anything other than very short term select situations, ie, acute muscle strain or spasm. If one truly needs a pharmacological sleep aid, there are several superior options and those should be used only after non-pharmacological options have been exhausted.

Thanks Skunky......I copied your post so I can talk to my Dr. about my insomnia and CFS problem. Do Not want to take anything that would potentally be a hypnotic.

SoWal Guide

Sep 26, '07 · 2:39 PM#231

hi kat!

we're thinking of you both! get well Dougie-baby!

Beach FanaticAuthor

Sep 26, '07 · 5:07 PM#232

Please keep the prayers coming. Doug's back, near the lower hip area, is giving him so much pain he can't sleep, cannot find a comfortable position to sit or lie on, and he is really depressed about it.

There are others out there that need our prayer too, but I am not at liberty to post their names. Just a short thought would be great!

Thank you my SoWal friends!!!!

PAIN 

Beach Fanatic

Oct 1, '07 · 12:37 AM#233

Please keep the prayers coming. Doug's back, near the lower hip area, is giving him so much pain he can't sleep, cannot find a comfortable position to sit or lie on, and he is really depressed about it.

There are others out there that need our prayer too, but I am not at liberty to post their names. Just a short thought would be great!

Thank you my SoWal friends!!!!

PAIN 

Beach Fanatic

Oct 1, '07 · 11:06 AM#234

Oh Kat - I am sorry to hear that Doug's pain is so miserable. I am not a doctor, but hopefully there is something that can be done to get him some relief, quickly, while the causes and treatment can be planned rationally. More {{{hugs}}}

Beach FanaticAuthor

Oct 11, '07 · 1:29 AM#235

Oh Kat - I am sorry to hear that Doug's pain is so miserable. I am not a doctor, but hopefully there is something that can be done to get him some relief, quickly, while the causes and treatment can be planned rationally. More {{{hugs}}}

Thanks so much SN....looks like another MRI. The shot has not helped. He at least is able to work at the cafe now for about 4 hours a day. This helps him....as he misses being in that kitchen!

Beach Fanatic

Oct 11, '07 · 6:12 AM#236

Dear Katz: Sorry to hear Doug's back problem just isn't going away. I hope something works soon. It sounds very tough. Would acupuncture ease the pain at all?

Beach Lover

Oct 12, '07 · 1:34 PM#237

First time reading this blog. Kat, I am thinking about you and Doug. I know when someone is sick the care giver needs so much suport. You never realize that till you are in that situation and you are exhausted. I really hope things start to really improve, God knows you deserve it!! Keep you head high and remember things will get better... You are in my prayers too!

Hope Dougs gets better as well... Thinking of you!!!

Beach FanaticAuthor

Oct 13, '07 · 2:01 PM#238

First time reading this blog. Kat, I am thinking about you and Doug. I know when someone is sick the care giver needs so much suport. You never realize that till you are in that situation and you are exhausted. I really hope things start to really improve, God knows you deserve it!! Keep you head high and remember things will get better... You are in my prayers too!

Hope Dougs gets better as well... Thinking of you!!!

Thank YOU so much my friend! Is that Gabriel on the Seadoo? He's adorable!!!!

Hope you found a pet friendly place to stay....and hope to see you when you are here again!!! Call me. Tell everyone D&K's sends their thanks...it was such a pleasure to meet all your peeps! Loved your Dad...such a happy person!!!!

Kat and Doug
Don't forget Gabriel's pic....and tell him Heyyyyy from me!

Beach FanaticAuthor

Oct 13, '07 · 2:09 PM#239

I have a friend who lives in the western part of Tennessee, who I would like us all to keep in our thoughts and prayers. She is a SoWal member....so you know she is one special lady!!!!;-)

She in my "TenderHearted" new friend. God Bless you gull....I know what you're going through!

ya

Beach FanaticAuthor

Oct 13, '07 · 2:10 PM#240

UPDATE....good news! Even though Doug will have another MRI....he's back in the cafe some now. Thank You all! Long sighhhhh!

Kat

Beach FanaticAuthor

Oct 18, '07 · 7:39 PM#241

I'm still fighting CFS and Fibromyalgia. It's the fib...that's really giving me fits. Stress makes it worse. And, it's very painful.

Keep me in your prayers please!

Thank you so much ....Kat

Beach Fanatic

Oct 18, '07 · 8:39 PM#242

Hi Kat,
Hope you are feeling better. I haven't been on much lately, been very busy but still thinking of you.

BTW: I like your pumpkins!

Beach FanaticAuthor

Oct 24, '07 · 9:04 AM#243

Hi Kat,
Hope you are feeling better. I haven't been on much lately, been very busy but still thinking of you.

BTW: I like your pumpkins!

I have heard how busy you are. It's crazy here you think you move here for Paradise and shomtimes you become Parataxi!!!! Keep up all the grayt work you do ....just don't let it run you in the ground!''

If you like the pumpkins stop in for a glass of wine and see the inside! Lots of funn to be had!

Doug had another MRI yesterday and we are waiting to hear from his Doctor.
Still asking for thoughts and prayers!

Kat

Beach Fanatic

Oct 24, '07 · 9:06 AM#244

Prayers continue from here.

Beach FanaticAuthor

Nov 6, '07 · 1:50 PM#245

Please help me....My CFS and Fibro. has attacked me with a vengence. I am having short term memory loss. I found 7 of my gift cards for the End of Summer Story Contest in another purse I used weeks ago. So sorry if you have not gotten yours yet. Please e-mail me at katatthebeach@aol.com if you have not received yours. If you want to PM me go ahead.

I may need a part time assistant to help me with things at home and cafe. If interested pm or e-mail me.

Thank you all for your continuous prayer for our family!!!

Kat

Beach Fanatic

Nov 7, '07 · 5:24 AM#246

Katz: Sorry to hear that this is such an ongoing struggle. You're definitely in my thoughts and prayers. How's your husband doing?

beats on hood

Nov 7, '07 · 6:04 AM#247

So sorry to hear that. Hopefully your CFS will get better like mine did. I know that the fibro is tough because daughter's BF' mom has it. I will keep praying for you.

Beach Comber

Nov 7, '07 · 1:18 PM#248

Hi Kathy,
Know that my thoughts, prayers and wishes of improved health and happiness are with you, if there is anything I can do (now that I am gainfully unemployed and have lots of time on hand),just let me know, God Bless...
Patty

Beach Fanatic

Nov 7, '07 · 1:42 PM#249

Hi Kathy,
Know that my thoughts, prayers and wishes of improved health and happiness are with you, if there is anything I can do (now that I am gainfully unemployed and have lots of time on hand),just let me know, God Bless...
Patty

.....So Sweet! I feel the same way Kat.... :wub:

Beach FanaticAuthor

Nov 7, '07 · 4:18 PM#250

Katz: Sorry to hear that this is such an ongoing struggle. You're definitely in my thoughts and prayers. How's your husband doing?

Thanks Paula...I've just been under so much stress and that makes it worse. Doug is Doug....what can I say. He's a hard head and won't do what the Doctor tells him to, which is why he gets in this health crisis in the first place. Sorry but true. I put myself out for him for weeks and weeks making myself weaker and weaker....so he's going to have to do this on his own, as he gets mad at me for suggesting what the Doctor says. I realize at this time Kat has got to put herself first! Sounds mean...maybe, but I'm not going to be able to take care of our daughter if I keep going this way or myself. So there....that's my new liberation statement!;-)

So sorry to hear that. Hopefully your CFS will get better like mine did. I know that the fibro is tough because daughter's BF' mom has it. I will keep praying for you.

Thank You Beach Runner.....I can get the CFS under control (if I let go of a number of things) the fibro is harder. Thanks for the prayers....I think I need to take it a step further and add action to prayer....to ask for help when I need it. It's very difficult for me. But I am determined to get through this!

Hi Kathy,
Know that my thoughts, prayers and wishes of improved health and happiness are with you, if there is anything I can do (now that I am gainfully unemployed and have lots of time on hand), just let me know, God Bless...
Patty

You are so sweeet to offer your time....thank you. I should take you up on it....I think I have a problem with vanity too. Pray that I will let go of the things that I need to and let those who can help me physically!

.....So Sweet! I feel the same way Kat....

LIGHTWORKER....your words of wisdom have kept me strong.....keep them coming girl. Help me to remember to breathe, to be compassionate, and to love unconditionally!

To ALL of YOU!
Kat