I have so many stories from seeing Mom in long-term care, oblivious to her circumstances, that I could write a book. Like I've said, if you haven't experienced having a loved one with Alzheimer's, you have no clue what it's like.
Here's a little vignette from two weeks ago:
We arrived and Mom's face lit up. She is so beautiful -- perfect bone structure, perfectly beautiful hair, great figure for someone her age, and so sweet on the inside (which we understand after she went through the mean stages of dementia which we thought was truly mean until we began to understand Alzheimer's).
She's sitting in the living room of the NH with no view of the TV. Doesn't matter because she can't focus on TV anymore. Can't enjoy Gator sports on TV or seeing pro golf tournaments on TV like she could a year ago.
Another resident slowly progresses towards the TV and parks her wheelchair right in front of the TV.
While this is going on, another resident requests cranberry juice which was delivered to him promptly. He continued to shout, "Cranberry juice. Cranberry juice."
In the meantime, some of the more lucid residents started complaining about the woman blocking the TV. I offered to move her, but that was met with great resistance. I decided to let the staff take care of it.
I started smelling a strong odor. I asked Mom if she needed to go potty. One of the CNAs told me that Mom is totally incontinent, not even being aware of her #1 and #2, so they have to check her every two hours. There will be an extra charge for us for that service.
Like the doctor told me when I took Mom a few weeks ago to rule out pneumonia, Mom's body is healthy, but Mom has left the building.
Hubby says that this is harder for him than when his Mom died of cancer in 2003 because at least she was still smart and they could talk about the good times and say their goodbyes. We won't get to do that with my Mom.
TMI, I know, and boring. But sharing is cathartic.